Business Daily Media

Australians need more protection against genetic discrimination: health experts

  • Written by Jane Tiller, Ethical, Legal & Social Adviser - Public Health Genomics, Monash University
Australians need more protection against genetic discrimination: health experts

Genomic testing — the ability to read an individual’s genetic code and identify their risk of conditions such as cancer — has opened up huge possibilities in personalised medicine.

But it has also introduced serious ethical challenges. Particularly, there is the danger of life insurance companies using such information to discriminate against those at higher risk of conditions.

Canada, Britain and most European countries have already banned or restricted life insurers from using genetic test results.

Australia’s response so far has been mostly to leave it to industry self-regulation. But our research suggests most health professionals don’t think this is enough. More than 90% of the experts[1] we surveyed agreed more government oversight is required.

Australia’s regulatory approach

Australia’s federal Private Health Insurance Act (2017) prohibits health insurers from using genetic information to discriminate against customers. But there is no legal prohibition against life insurers using results to charge people higher premiums or deny them coverage altogether. This applies to death cover, total and permanent disability, critical illness/trauma and income-protection cover.

In 2018 a joint parliamentary inquiry[2] recommended a prohibition against life insurers using the outcomes of predictive genetic tests, at least in the medium term. It also recommended the government maintain a watching brief and consider legislation in future.

The federal government did not respond to the inquiry’s report, leaving it to the industry to self-regulate.

Read more: Australians can be denied life insurance based on genetic test results, and there is little protection[3]

In 2019 the financial services industry’s peak body, the Financial Services Council, introduced a five-year moratorium on insurers using applicants’ genetic test results up to certain financial limits.

Life insurers can only ask for or use genetic test results for policies worth more than A$500,000 for death cover or total and permanent disability cover, A$200,000 for critical illness/trauma cover, and $4,000/month for income protection.

Given the median yearly household income is about A$122,000[4], these thresholds are arguably too low to prevent insurers from using genetic test results in many cases.

Our survey results

With the moratorium now half over (it will end in 2024), we surveyed health professionals to gauge their views about Australia’s approach. The survey was part of a federal government-funded research project[5] to evaluate the moratorium.

Of 166 respondents, 121 were genetic specialists — geneticists and genetic counsellors who help people make sense of and make decisions about genetic testing. There are 480 such specialists in Australia registered with the Human Genetics Society of Australasia[6]. With genetic testing increasingly being offered outside genetics clinics, we also invited specialists such as oncologists to take part.

Not everyone answered every question, so the following percentages are based on those that answered specific questions. While 93% agreed consumers are better protected under the moratorium, 88% remained concerned about genetic discrimination.

The most common complaints were that the financial thresholds were too low, there was no certainty for patients beyond 2024, and the insurance industry couldn’t be trusted to regulate itself.

More than 90% said the Australian government should introduce legislation to regulate life insurers.

Canada’s legislation[7], for example, bans insurers and other service providers from using genetic test results to discriminate against applicants.

The British government, meanwhile, has a hybrid regulatory model. This involves a Code on Genetic Testing and Insurance[8] agreed to between the government and life insurance industry. In our survey, 95% said a similar approach is required for Australia.

Read more: Why New Zealanders are vulnerable to genetic discrimination in health and life insurance[9]

Safeguarding Australia’s genomic future

Genetic technology is transforming health care. Precision medicine relies on genomic testing to personalise therapeutic treatments. Genomic research is also critical to understanding disease, improving diagnostic methods and guiding the selection of the most effective drugs for treatment.

To maximise its potential and ensure public trust in genomics, it seems clear more must be done to prevent genetic discrimination and ensure all Australians — particularly those most at risk from genetic conditions — can benefit from the genomics revolution.

Authors: Jane Tiller, Ethical, Legal & Social Adviser - Public Health Genomics, Monash University

Read more https://theconversation.com/australians-need-more-protection-against-genetic-discrimination-health-experts-168563

Business Reports

EOFY explainer: Everything your business needs to know about the instant asset write-off

Australia has long been renowned as a rich and vibrant small business nation, where entrepreneurialism is encouraged and celebrated. It has, however, been a challenging period for small business owners, and the transition from o...

Brand Expert Shines in Business Awards

Sydney multipreneur Zahrina Robertson, who is known for producing world-class visual assets, has been named a finalist in the North Shore Local Business Awards. The founder of Zahrina Photography & Video[zahrinaphotograph...

New Image acquires Nutrimetics from Tupperware Brands

New Image Group has acquired skincare and cosmetics brand Nutrimetics from Tupperware Brands Corporation (NYSE: TUP) for an undisclosed sum. Nutrimetics is a natural fit with New Image’s portfolio of health and nutrition prod...

Save, spend or invest? New offering allows Aussies to maximise their savings

With the turn of a new financial year, Australians are at a loss of how to make the most of their tax refunds this year with rising costs of living and low return on savings. The Australian Investor Sentiment Report 2022 reve...

Commercial Painting Revitalised Shop Fronts and The Economy – Why Did the Funding Dry Up?

State governments provided retailers with grants to revitalise their shop fronts in a bid to help the ailing industry. The $2000 - $10000 grant aims to ‘add a lick of paint” and some street appeal to retail outlets not onl...

How to Succeed as a Call Center

If you aspire to build a productive and prosperous call center, you need to begin from the zenith or top. After all, your workforce won’t be able to create a positive experience for your customers if they’re not managed pr...

Web Busters - Break into local search

WebBusters.com.au